← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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@johnbishop

Hello @jkincaid21, I would like to add my welcome to Connect along with @legendsts and other members. I've had 2 occurrences of PMR but now it has been in remission since 2016. Like you and others I think an anti-inflammatory diet plays a big part in living with PMR. I didn't have an issue with the puffy face either but the longest I was on prednisone was my first occurrence and that was 3-1/2 years. I didn't start eating healthy and worrying about my weight until the second time around with PMR which lasted 1-1/2 years. I think as you taper off of prednisone you will be able to tell whether or not you are going to quickly. I started both times at 20 mg and eventually found a tapering schedule with my rheumatologists recommendation that worked for me. He also suggested I keep a daily log of the dosage and the pain level I was feeling when I first got up in the morning. That log really helped the second time around with PMR.

Did your doctor or rheumatologist provide or recommend a tapering schedule for you?

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Replies to "Hello @jkincaid21, I would like to add my welcome to Connect along with @legendsts and other..."

Hi John----My doc has provided a tapering off schedule in 5 mg increments. I found going from 20 to15 a bit problematic so since then I've been coming down by 1.25 mg and that seems to be working well. Just started 11.25 (bought a darn good pill cutter!) and hope to be at 7.5 by mid-May. I'm also very fortunate to have a hot-tub and created my own stretch and strengthen routine which takes about 25 minutes each morning and that is so helpful. I think it's very interesting that neither my family doc or rheumatologist seem particularly interested in nutrition or exercise as an important part of recovery. If that small prednisone pill can have such a profound effect on our recovery, how can we ignore the pounds of food we put in to our bodies each week?