← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Discussion
Comment receiving replies
@jkincaid21

I was diagnosed in November, 2021. Based on numerous testimonials on youtube and internet regarding inflammatory issues I decided to change my diet to vegan. Truthfully I can't say if my diet or the prednisone is responsible for my huge improvement but I've lost 23 pounds and am not experiencing the "puffy" face so many steroid patients suffer from AND my blood pressure has actually come down most of which I contribute to my diet. My doc wants me to stay on prednisone for at least a year and am I so fearful of a flare-up that I'm probably going to stay the course. Did anyone else come off prednisone more quickly?

Jump to this post


Replies to "I was diagnosed in November, 2021. Based on numerous testimonials on youtube and internet regarding inflammatory..."

Hello @jkincaid21, I would like to add my welcome to Connect along with @legendsts and other members. I've had 2 occurrences of PMR but now it has been in remission since 2016. Like you and others I think an anti-inflammatory diet plays a big part in living with PMR. I didn't have an issue with the puffy face either but the longest I was on prednisone was my first occurrence and that was 3-1/2 years. I didn't start eating healthy and worrying about my weight until the second time around with PMR which lasted 1-1/2 years. I think as you taper off of prednisone you will be able to tell whether or not you are going to quickly. I started both times at 20 mg and eventually found a tapering schedule with my rheumatologists recommendation that worked for me. He also suggested I keep a daily log of the dosage and the pain level I was feeling when I first got up in the morning. That log really helped the second time around with PMR.

Did your doctor or rheumatologist provide or recommend a tapering schedule for you?

I was diagnosed 2016. 15 mgs took all the pain away but I did reduce too quickly a couple of times in the beginning and had flares, causing me to up my dose from 7 to 10 for a while. I am in my fifth year and am on 3 1/2 mgs for the last few months. PMR lasts an average of 5.9 years. Very few have remission by or before 2 years. Males get off more frequently. You might google the 2017 Mayo/Mathison study on PMR and prednisone which states the 5.9 years average. When reaching 10 mgs, it is advisable to reduce by 1/2 mgs on a slow reduction schedule. I have given my schedule a day or ago. You must also consider that once on long term prednisone,your adrenal glands cease production of cortisol and they must be awakened around 6 or 7 mgs. You cannot immediately stop using pred because of this. Sometimes it takes up to a year for them to function or not.