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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)Comment receiving replies
Oh @erikas how I hate to be one of the examples....for something bad lol!!! Actually, I have not tapered down from PMR, but from Mesenteric Panniculitis (MP). Prednisone is a great drug. It really helped me in 2014, but this bout has not been so effective in that when I am able to try to taper down because of the MP, my PMR acts up. If on too high a dose for a long period of time, the esophageal spasms return....not to mention weight gain (I don't think it's ever going down!), moon face, facial hair, mood swings, insomnia etc. etc. I am curious as to this tocilizmab. Does it replace the prednisone or the methotrexate? Or is it a new accompaniment?
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@kimh I didn't tag you for something bad. I tagged you because you have discussed the topic or similar. You are giving me too much credit. There is no way I can remember most member details unfortunately. We have over 100,000 members. I hope you hear the humor in my tone.
Tagging just puts feelers out there, in the hope that someone can offer information and/or emotional support. If I ever tag you and you don't feel you have anything to offer, feel free to ignore the tag and please accept my apology.