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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)Comment receiving replies
@rkprice Welcome to Mayo Clinic Connect.
Four taper attempts seems like a lot. Members like @kimh @irishdancer @layla7511 @phoenix0509 @jfarreast @pringsmuth @virginiaj @lumberjill @karinaph @sharenb .@phoenix0509 @dmsbronch may be able to offer support.
May I ask what your provider told you about the medication tocilizmab?
Replies to "@rkprice Welcome to Mayo Clinic Connect. Four taper attempts seems like a lot. Members like @kimh..."
My neurologist suggested I speak to my RA doc re: tocilizmab. Said he had read good things about it but I should be guided by my RA.
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Oh @erikas how I hate to be one of the examples....for something bad lol!!! Actually, I have not tapered down from PMR, but from Mesenteric Panniculitis (MP). Prednisone is a great drug. It really helped me in 2014, but this bout has not been so effective in that when I am able to try to taper down because of the MP, my PMR acts up. If on too high a dose for a long period of time, the esophageal spasms return....not to mention weight gain (I don't think it's ever going down!), moon face, facial hair, mood swings, insomnia etc. etc. I am curious as to this tocilizmab. Does it replace the prednisone or the methotrexate? Or is it a new accompaniment?