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@legendts

Many thanks to you all for the warm welcome and your posts specifically to me. I was supposed to be looking after my wife (she has CLL) but in this instance she was looking after me! Thank goodness I am back pretty much to normal. I didn’t have any pain or discomfort at all this morning so I’m hoping that continues. I really feel for those of you that had/have so much trouble getting diagnosed as I really only had to persevere with severe symptoms for about three weeks. I am hopeful that getting onto it early may give me a better long term outcome providing I follow a slow tapering off of the Prednisolone. Subject to seeing a rheumatologist and the first available appointment is mid June, I am going to do 15mg for three weeks, 12.5 for the same then 10 for four to six weeks (probably do five weeks) then reduce by 1mg every five weeks to zero. Such a wealth of information on this site and still trying to navigate around it. Keep safe folks. Edit: DEXA scan happening on 26th and last one three years ago was borderline osteoporosis.

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Replies to "Many thanks to you all for the warm welcome and your posts specifically to me. I..."

Hi Jeff, I was also fortunate to be diagnosed with PMR within a month of overnight onset of symptoms and started with prednisone of 15 mg. I also followed your intended rate of reduction pretty much and two and a bit years later been off prednisone for a couple of months. Symptoms still there in the background just enough to be aware its there, but very happy to be where I am. Hopefully you will be the same.