← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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@irishdancer

Hi Jeff,
Welcome. You will be grateful for finding this blog and hearing the stories and wisdom along your journey. You were wise to print off a Mayo document and take it in. I was diagnosed with PMR, August of 2020 after retiring from the CDC. I was quite sure that I had PMR, although I did question at first whether the pain was a result of my osteoarthritis. I went to 2 different GP's, one that wasn't even sure what PMR was and the other one that said I couldn't possibly have it because my ESR and CRP were in the normal range. I too, had to take information showing that around 20% of people have normal values and that the diagnosis of PMR should not rest on these inflammatory markers. I was able to find a rheumatologist that concurred with me. She put me on prednisone and I have been tapering down, now at 3 mg. I don't ache like I did, although a bit stiff. I try to do yoga 3 or 4 times a week, exercise everyday and eat for the most part an anti-inflammatory diet. Hoping all that helps. Just a word of caution - be careful about tapering too quick. My dexa scan did show that i have osteopenia so I take bone strength and walk with a weighted vest. Trying desperately not to take fosamax, but may have to one day! I wish you well.
BTW - I have had both of my moderna shots and so far so good for those wondering about the covid vaccine!

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Replies to "Hi Jeff, Welcome. You will be grateful for finding this blog and hearing the stories and..."

Thank-you for the update on the vaccine!! It's funny. So many of us seem to fall in the 20% group of ESR and CRP being in the normal range, yet suffering from PMR (don't you love all these acronyms???). Maybe the percentage is a little higher???