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DiscussionPolymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
Replies to "I am a 68 year old male. I was diagnosed with PMR about a year ago...."
Hello @mr11344, Welcome to Connect. I see that you found the discussion and were able to connect with other members discussing a vaccination that triggered PMR - PMR (Polymyalgia Rheumatica) induced by flu vaccine: https://connect.mayoclinic.org/discussion/kristen/
Have you been able to discuss your experience with your rheumatologist to see if they might have some suggestions for a tapering schedule or something else that might help?
My first bout of PMR started the morning after I did a 5-mile run/walk. I had been exercising daily, but tried to go faster. The next morning I was really stiff, but thought it was normal stiffness after a new activity. It got worse and worse. Eventually I couldn’t turn over in bed at night and riding in a car left me so stiff I couldn’t move at first. I tried stretching, etc before I finally saw my internal medicine doctor. I was working in a small clinic so talked to her before my appt and she ordered a lot of labs. Highly elevated sed rates, classic presentation led to immediate diagnosis and I saw a rheumatologist that day. I was on prednisone for 2 years. My latest bout came about about 3 weeks following a cortisone shot in my knee and removal of 60 cc’s of fluid. Seems to be related. I am now on about my 14th month of prednisone, trying to be patient about decreasing. It never seemed to be related to vaccines as I went 12 years between bouts and had flu vaccine yearly, Shingrix and pneumonia vaccines with no ill effects. It is a strange thing to have. I like this forum, as no one else I know has this and your posts help me.
I started with PMR after my second ever flu shot. My rheumatologist suspects it’s coincidental. I’m not convinced. However I did get dose #1 of the Covid vaccine with no particular problems. And my pneumonia shot was uneventful