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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Sep 10 12:05pm | Replies (1906)Comment receiving replies
the more i read about pmr and the more i have my own experiences i have come to the conclusion this is a tricky disease..i was doing well on taper from 20 to 7.5 when i relapsed and had to return 20 which was inadequate..now on 25mg for4 days with relief of pain and increased mobility of hip joints..however i too suffer greatly from severe fatigue which my rheumatologist says is not characteristic of pmr --i totally disagree but dont won't to come off as an arrogant dr/patient
Replies to "the more i read about pmr and the more i have my own experiences i have..."
Yes, I also find fatigue to be part of either the PMR itself or the prednisone. I don't think the doctors really know too much about this disease and a lot of it is guess work. For instance, when I mentioned the fatigue to my oncologist, who is aware of my PMR, suggested I take myself off of the Anestrozole for a couple of weeks to see if that helped. Of course, it didn't. It is a little comforting to know that I am not the only one with the fatigue.
I totally agree that fatigue and PMR are related. I too have severe fatigue and was diagnosed with PMR Nov. 2019.
I don't think it should be considered arrogant when you know what your body is feeling! It's actually very helpful when you share your suspicions because you may find that many of us are in agreement with you.
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I also had severe fatigue, BP and thyroid meds also contributed, but I agre=
e that fatigue is a side effect.
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