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Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
Replies to "I just had a relapse. I have been on 20mg. For 3 weeks And I have..."
@123suew, Sorry to hear that you haven't seen much improvement on the 20 mg prednisone dosage. Sometimes if you try to taper too fast the PMR can flare back up. Have you discussed it with your rheumatologist?
Such a good question @123suew . I have been as high as 40 mg (I also suffer from Mesenteric Panniculitis, and Prednisone is also the 'go to' medication), and have been tapered down to 15 mg. I can't seem to budge from there without consequences of one disease or the other! I have been on Prednisone steadily since Aug. 2017. I also wondered if our bodies can become 'used to' prednisone?
the more i read about pmr and the more i have my own experiences i have come to the conclusion this is a tricky disease..i was doing well on taper from 20 to 7.5 when i relapsed and had to return 20 which was inadequate..now on 25mg for4 days with relief of pain and increased mobility of hip joints..however i too suffer greatly from severe fatigue which my rheumatologist says is not characteristic of pmr --i totally disagree but dont won't to come off as an arrogant dr/patient
I started at 20, it only worked when I took 10 mg in the morning and 10mg a=
t night. Reduced by 2.5 mg every 3 months, when I got down to 10 mg, had a=
relapse and went back up to 20mg. I understand your pain and frustration,=
but it is the only drug that works by reducing the inflammation, thereby r=
educing the pain. Was told to only reduce by 1 mg, so it took several year=
s before I got down to 1 mg, stayed at that for a very long time.
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