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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)Comment receiving replies
I contacted him about the dosage and he didn't suggest splitting it. I do tolerate the morning pain pretty well, esp. since I know it will ease up by 1 pm! The rheumatologist did say that I should expect to have PMR for 1.5 years - this is probably an average, right? I have read that the tapering should be about one mg. per month, but your experience was faster on the 1 or 2 week schedule, right?
I also want to say I am so glad I found this forum. PMR is such a strange and unknown disease -- so much so that it can go undiagnosed in some of us for months. Thank you for all you do here.
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@moni54, Each of us is different when it comes to tapering and how PMR affects us. I discussed tapering and got some tips from my Mayo rheumatologist. When I could go down every 1 or 2 weeks without pain I did, but there were times when I had to go down a month at a time earlier in my bout with PMR. The last 6 months before I tapered off completely was the hardest and I was going back and forth from 1 mg to 1/2 mg every week until I was able to stop taking prednisone. My 1st occurrence with PMR lasted 3-1/2 years, second time was 1-1/2 years.