Sorry you had such a difficult road to get to PMR diagnosis! I had never heard of PMR, so I had no clue what was going on with my body. Like you, I found the fatigue overwhelming—especially in the beginning. My PCP referred me to Rheumatologist, took 2 mos to get in—first thing she said when I told her about my swollen hand was that PMR doesn’t affect hands!!—I was so disappointed I could have cried!—never went back. So my PCP & I are a team— both learning as we go! You’re right, how lucky that PMR doesn’t result in permanent damage to muscles, ligaments & joints—loss of strength can improve with exercise/therapy. Hope you continue to improve!

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