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@johnbishop

Hello @moni54, Welcome to Connect. Thanks for sharing your PMR story. I'm with you on the rather be on a lower dose of prednisone crowd but pain is the boss when it comes to PMR and tapering. I've had 2 occurrences which my Mayo rheumatologist started me on 20 mg prednisone for both occurrences. I was told to take it slow and easy when tapering and listen to what my body was telling me. I found I could live with a little pain or discomfort which probably like you was around a 1-2 on the pain scale. I didn't tolerate the 1-2 well for my first occurrence with PMR and it took me 3-1/2 years to taper off. Six years later when the PMR came out of remission it took me about 1-1/2 years to taper off and the 1-2 on the pain scale was normally for the first few days after tapering to a lower dose. The last six months of each I tapered by 1 mg or 1/2 mg on a week or two week schedule. My rheumatologist really helped me with the tapering schedule when I had any questions.

Have you asked your rheumatologist on the possibility of splitting your dose and taking some in the morning and some in the evening to see if that helps reduce the pain/discomfort in the morning?

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Replies to "Hello @moni54, Welcome to Connect. Thanks for sharing your PMR story. I'm with you on the..."

I contacted him about the dosage and he didn't suggest splitting it. I do tolerate the morning pain pretty well, esp. since I know it will ease up by 1 pm! The rheumatologist did say that I should expect to have PMR for 1.5 years - this is probably an average, right? I have read that the tapering should be about one mg. per month, but your experience was faster on the 1 or 2 week schedule, right?
I also want to say I am so glad I found this forum. PMR is such a strange and unknown disease -- so much so that it can go undiagnosed in some of us for months. Thank you for all you do here.