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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
Hello @pampep, I would like to add my welcome to Connect along with @heretuanga1947 and other members. I'm 77 and have had 2 occurrences of PMR. The 1st time it took me 3-1/2 years to taper off of prednisone. I started with 20 mg and the last six months went between 1 mg and 1/2 mg until I was able to taper off with only minor pain.
@ssg and @dadcue have discussed PMR and osteoporosis in another discussion and may have suggestions for you.
Have you talked with the rheumatologist about a slower tapering schedule or other things you can do to help your symptoms?
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Thxs @johnbishop.
My first taper was Nov 019 and went a month @ 15mg down to 12.5 a month then @10 started 2wk regiment going down to 2. Then I had a relapse. So next appt in Jul back to 10mg for 5 days then 7mg for a week then 6mg for a week. So then 5, 4, 3, and now 2mg each for 14 days. I did continue to have a lot of pain and swelling but hoped it might go away, ha ha, never did. So now my appt next week I have been doing 2mg one day and 4 the next . My big concern is how my ankles, feet, hands and wrists are not responding. I don't see much info from others about those being issues. I still have the muscle weakness in quads and shoulder. Thxs I will look at the other articles on osteo