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DiscussionPolymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Sep 10 12:05pm | Replies (1906)Comment receiving replies
Replies to "Thxs for the reply. Like you I want off of prednisone. I have osteoposis and also..."
It was the Covid that pushed me into making more of an effort in reducing the prednisone as well. That and so many of the side effects that could occur unknown to us immediately, like increase in blood sugar, high blood pressure and lowering immune system. All the things that tend to happen when we get into our seventies. They say we all differ of course but for me the first onset was the worst and coming down I can't say I have had any flare ups but I do notice now and then stiffness in back and hands and shoulders that weren't there in the first month at all.I must admit I have still have difficulty in understanding how people know whether a new symptom is actually a result of withdrawal of prednisone or the original PMR getting worse. You might not be interested in that aspect. John gave us some links during an earlier conversation. Your osteoposis must make it trickier to diagnose.