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@pampep

I'm a 73 year old female diagnosed with PMR after a rapid onset of muscle pain in legs, hip, and arms. My blood tests showed elevated CRP, RA latex, but normal sed rate. So my doctor referred me to a rheumatologist. I was started on the prednisone dose pack and within three days pain free. Went to 15 mg and started weaning down from there over six month period. When I reached 2mg I started getting swelling in all my joints (unlike onset, now in joints instead of muscles) including wrists, hands, knees, ankles, toes and bottom of my feet. This is on both sides. At appointment, she noted how hot and swollen joints were and said probably a flare up. She put me up to 10mg to start wean down again. Probably a flare up now with inflammatory issues. She won't say RA but maybe pseudo gout. Can you have both?

I am back down to 3mg and still having these issues after another five months. When I get out of bed it is very difficult to walk and am hobbling as feet and ankles don't want to support me. Also, hands and wrists feel like giant paws. I do some walking and it loosens some but when I return and sit they go back to stiffness that last throughout the day. Up coming appointment in a week and wondering about other avenues to pursue. Would an MRI or ultra sound show any other issues that might be the cause of continual pain. Are there other drugs I should consider? I'm finding it very hard for an extremly active person to hardly be able to function. Thank you for any suggestions you may have.

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Replies to "I'm a 73 year old female diagnosed with PMR after a rapid onset of muscle pain..."

I am also a 73 year old female with same history as you describe except I have taken two years to come down from 15 mg daily prednisone to taking 1 mg on three days a week. My aim was and is to get as low as I can while tolerating the symptoms. So when you mention yourself having other issues than PMR and you are considering more investigations it does seem worthwhile. I know how hard it must be for an extremely active person as yourself. Wish you good luck in your search for answers..

Hello @pampep, I would like to add my welcome to Connect along with @heretuanga1947 and other members. I'm 77 and have had 2 occurrences of PMR. The 1st time it took me 3-1/2 years to taper off of prednisone. I started with 20 mg and the last six months went between 1 mg and 1/2 mg until I was able to taper off with only minor pain.

@ssg and @dadcue have discussed PMR and osteoporosis in another discussion and may have suggestions for you.

Have you talked with the rheumatologist about a slower tapering schedule or other things you can do to help your symptoms?