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DiscussionPolymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Sep 10 12:05pm | Replies (1906)Comment receiving replies
Replies to "I don't really know how long I will remain on Actemra. I have had a total..."
I went to Actemra injections every two weeks after a year of weekly Actemra injections with no significant flares. I've been fine, with no relapse after 6 months of Actemra injections every two weeks. Also, some of the side effects of Actemra have gone down; in particular the increase in LDL cholesterol went down, almost to my normal levels experienced before being ill and going on Actemra.
I was originally diagnosed with non-cranial Giant Cell Arteritis due to severe inflammation levels (for example, CRP= 347 mg/L).
Yes, it would be interesting to hear about an actemra taper. When I was being shown how to administer it, the nurse told me that her clients are all taking it (by infusion) for RA, and would be on it for life. Infusions are about to be ceased and they have to move to injections and they are not happy.