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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)Comment receiving replies
I have both but the GCA was only discovered incidently, when searching for a reason for such high inflammation. So it sounds as though it's important to remain on actemra post pred. Thanks again for your story, I found it most interesting.
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I don't really know how long I will remain on Actemra. I have had a total of 32 injections over the last 8 months. I told my rheumatologist during a phone visit in June that I would be willing to increase the interval between injections. The only response was that we will discuss that in six months...so I assume in December I may go to injections every two weeks. If you ask me, I don't think my rheumatologist has a plan. I feel much better than anytime in the past 12 years ... I don't want to rock the boat but I really do think I would be fine doing injections every two weeks.
I was hoping to get someone's experience with tapering off Actemra. It was recently FDA approved for GCA but not PMR yet. I'm familiar with TNF inhibitors for inflammatory arthritis and those people just stay on a biologic until they stop working and then they usually switch to a different biologic.