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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
Hi there. I've been following this group for several weeks. Each person sharing has been helpful to me as I try to wean off of prednisone. I was diagnosed in August 2019 after six weeks of paralyzing pain. My blood tests did not indicate PMR which my rheumatologist says is not uncommon. I was prescribed 15 mg. prednisone and experienced immediate complete reduction of pain. I felt great (except for the weight gain) until I got to 10 mg. At that point, each time I dropped a mg. I experienced pain that I had to work through. When I got to 7 mg. I hit a wall (pain), and now I'm trying to acclamate to 7 one day and 8 the next. I have some pain and fatigue, but it's doable so far. I appreciate this group. Thank you all.
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Hi @kmeikle1, Welcome to Mayo Clinic Connect and the big hurt club. There is most definitely like you say a lot of members here sharing their experience which helps each of us get through this nasty condition. I can relate to hitting a wall when tapering off of prednisone as I'm sure most of us here on Connect have experienced. I also had a terrible problem with weight gain on my first occurence of PMR which lasted about 3 years. The second time when my PMR came back about 6 years later I was aware of the weight gain problem and was able to keep it within a few pounds by controlling my diet and staying as active as I could without adding any pain.
Here's a good article on Medical News Today on What to eat if you have polymyalgia rheumatica:
https://www.medicalnewstoday.com/articles/321683
Have you tried making any changes in your diet or lifestyle with exercise to help with your PMR?