← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Discussion
Comment receiving replies
@heretaunga1947

Hi Chris, sorry to hear of your difficulties. I am similar age to yourself and also had rapid, overnight actually, onset of PMR. I am wondering if shock plays a part in this. Your colonosopy and the medication in your case, and in my case spending a couple of days with my ex husband and finding he had extreme paranoia all of a sudden living in fear of intruders, etc. Plays with your mind for sure. Anyhow I rapidly got onto prednisone at 15 mg a day and 16 months later got myself down to 2 and a half but in view of this pandemic cutting down to one one day, one and a half the next, for sake of immune system. Just holding the stiffness at bay. You ask about fatigue. Its a funny thing, comes and goes. Mine is more just sometimes my eyes shut and I drift off in company, or wherever. Kids just put it down to old age lol.It will last a day, then ok for a week perhaps. Its stayed the same from before diagnosis til now on very small amount of prednisone. Take Care in these difficult times.

Jump to this post


Replies to "Hi Chris, sorry to hear of your difficulties. I am similar age to yourself and also..."

Thanks for the reply heretaunga1947. I think you might be right about the shock to the system. My doctors did think that the Cipro I was given for the diverticulitis was a springboard for the PMR, but who knows for sure. It took 3 months for me to get a diagnosis, although for part of that time I just thought it was old age and the remnants of my breast cancer treatments. I've only been on 10 mg Prednisone for 8 days now, so am fairly new to this. It has helped a lot, but still have a small amount of pain in my shoulders, but it's bearable. I 'm still trying to get my head around the fact that this is a long term deal. Sorry about your ex. I can kind of relate as my husband has PTSD from being in Vietnam.