I hope I am handling this post correctly. I was diagnosed with PMR in March 2019. I have since been told that I also have GCA. Temple biopsy was inconclusive, but the pain in my temple along with legs, hips, shoulders and neck has my rheumatologist believing that I have both. I was started on Prednisone 20 mg. That had no effect on the pain. I was then put on 60 then 80 mg. Prednisone. That worked. Doctor had me start reducing the dosage on my return from a trip overseas. From 80, 60, 40, 20, 10, and then 9. My ESR, which dropped from over 100 to a normal 07 started to go up again, as well as an increased pain level. My Rheumatologist had me increase from 10 to 20 mg. Test are now back to a normal range with less pain. Just started the dosage réduction again at 15 mg Prednisone. So far, so good. In addition to all this, over the last several months I have experienced extremely weak legs. Some days worse then others. My doctor says I am experiencing steroid myopathy. Only way to get over the tired legs is to get off the Prednisone. That’s where I am with this illness right now. BTW... while on 80 mg. Prednisone last May, I came down with double pneumonia and sepsis. It’s been a long recovery, but I am way better then back in May.

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