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@johnbishop

@ronhonn that is frustrating to say the least. I would encourage you to call the Office of Patient Experience at Mayo Clinic.

Office of Patient Experience
8 a.m. to 5 p.m., Monday - Friday
507-284-4988

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Replies to "@ronhonn that is frustrating to say the least. I would encourage you to call the Office..."

Thanks! And please understand, I'm not knocking Mayo, because at this point just talking to people who've heard of this condition is a breath of fresh air, I'm just incredibly frustrated with my doctors here in Tallahassee.