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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Sep 10 12:05pm | Replies (1906)
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@johnbishop

Hello @ronhonn, Welcome to Mayo Clinic Connect. I know it can be frustrating not getting the help you need. Have you thought about getting a second opinion from a major teaching hospital or Mayo Clinic? I was diagnosed and helped by a Mayo Clinic rheumatologist who described PMR in layman's terms to me as arthritis all over the body.

Here's what Mayo Clinic has to say about PMR:
https://www.mayoclinic.org/diseases-conditions/polymyalgia-rheumatica/symptoms-causes/syc-20376539.
If you would like get a second opinion from Mayo Clinic, you can find the contact information for the Minnesota, Arizona and Florida campuses here http://mayocl.in/1mtmR63.

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Replies to "Hello @ronhonn, Welcome to Mayo Clinic Connect. I know it can be frustrating not getting the..."
ronhonn | @ronhonn | Jan 23, 2020

Hi, John. Boy, this just gets worse and worse. 'Spent the last 3 hours on the phone with my insurance and doctors, including speaking to Mayo here in Florida. I was told that I can't get a referral to Mayo because my GP has never heard of PMR and doesn't think it's a thing. I talked to Mayo, 'said I was willing to pay out of pocket and they told me I'd need a $5000 deposit. When I said I'd raise the cash to just pay out of pocket before I become permanently disabled, the they said "Oooh! Right. Yeah we can't actually take you either unless you have a referral." This. Is. Insane.

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