Connect
← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Discussion
Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)Comment receiving replies
Hi @maija, welcome to Mayo Clinic Connect. You mentioned you recently started having extreme pain in arms, shoulders and neck and that you are currently on 6 mg prednisone. It sounds like the current dosage of prednisone is not helping with the PMR unless you have something else going on. Have you discussed the recent pain symptoms with your rheumatologist or doctor?
My PMR is in remission but with both occurrences when the PMR was active I was started on 20 mg of prednisone and tapered off from there. First time took me 3 years to taper off. Second time took me 1-1/2 years to taper off. I still live with some minor aches and pains which may be part of the PMR.
Replies to "Hi @maija, welcome to Mayo Clinic Connect. You mentioned you recently started having extreme pain in..."
Connect
Sorry for the misunderstanding -- pain began one year ago in January 2019. I have tapered down to 6 mg of prednisone and am free of pain: lingering stiffness occurs on and off. Attempted to decrease to 5 mg 3 weeks ago - symptoms began to reoccur. Dr had me return to
6 mg dosage and I have improved. Are you familiar with the "dead slow and nearly stop" taper schedule? Introduced by a Swedish gentleman on a UK Health Unblocked discussion group.