My first bout started in September, diagnosed in late October. When symptoms started, I didn’t know what was wrong, tried stretching, different exercise until I finally went to physician. I had a really high sed rate, classic symptoms, was diagnosed by my primary care physician and saw rheumatologist the same day. The second time 12 years later, symptoms started in November, diagnosed in February. That time I had symptoms, but CRP was only high normal. This time symptoms started in November, diagnosed in December. I have had the same primary care physician for all 3 and we have an excellent relationship. She wants me to see a rheumatologist again and I will see one at the end of January, but not sure if I will learn anything new. I pretty much have been free to titrate my dose down, just sending her a message every 2 weeks as to where I am and when I need more prednisone. I also have neutropenia and have had that since my first bout 15 years ago. I saw a hematologist at the time, it has been unchanged for 15 years, so now my primary just tests it every 6 months. It causes no problems.

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