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@virginiaj

My first bout started in September, diagnosed in late October. When symptoms started, I didn’t know what was wrong, tried stretching, different exercise until I finally went to physician. I had a really high sed rate, classic symptoms, was diagnosed by my primary care physician and saw rheumatologist the same day. The second time 12 years later, symptoms started in November, diagnosed in February. That time I had symptoms, but CRP was only high normal. This time symptoms started in November, diagnosed in December. I have had the same primary care physician for all 3 and we have an excellent relationship. She wants me to see a rheumatologist again and I will see one at the end of January, but not sure if I will learn anything new. I pretty much have been free to titrate my dose down, just sending her a message every 2 weeks as to where I am and when I need more prednisone. I also have neutropenia and have had that since my first bout 15 years ago. I saw a hematologist at the time, it has been unchanged for 15 years, so now my primary just tests it every 6 months. It causes no problems.

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Replies to "My first bout started in September, diagnosed in late October. When symptoms started, I didn’t know..."

@virginiaj thank you for explaining what time of year your 3 bouts of PMR occurred , I find it interesting that all 3 bouts of PMR started in the fall of the year. September,November and November. Also interesting is that my first case of PMR became acute in December 2019. Diagnosed finally after clinical symptoms and high CRP (29). I did have a Flu vaccine and Prevnar Vaccine together in October (2019).
@virginiaj- did you get the flu vaccine or any vaccine each fall prior to the start of each occurrence of PMR?

Thanks, David