← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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@johnbishop

Hello @phoenix0509, I see this is your first post and would like to thank you for sharing your PMR experience and welcome you to Mayo Clinic Connect. It really is a great place to learn together by sharing your experiences and learning from the experience of other members. My PMR seemed to be worse in the morning both times when it was active. Then once I was awake and able to move a little that seemed to help (along with the prednisone ☺) with the pain. Most of my pain from PMR was also in the shoulders, arms, hands and the lower back. The key for me was starting at 20 mg dose which took care of almost all the pain and then start tapering off as I was able to do with a minimum amount of pain. Each of us are different and I think that's a big struggle learning how much pain you can deal with when tapering off of prednisone.

Are you able to ask your doctor about splitting your dosage between morning and evening, or maybe adding the 5 mg dosage increase he suggested in the evening? I think that some members have mentioned it helped them to split the dosage. I started both my occurrences of PMR at 20 mg which I think is a fairly common starting point.

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Replies to "Hello @phoenix0509, I see this is your first post and would like to thank you for..."

John, @johnbishop, thank you for serving as a mentor to polymyalgia Rheumatica group (PMR). I will speak with my doctor about splitting my prednisone dosage to 10mg in am, and 5mg in pm. as a means to lessen the nighttime and/or early morning symptoms.
I also have SFPN (small fiber peripheral neuropathy) ,idiopathic in origin. My rosacea is also flaring every couple weeks this past month or so.
How many of the PMR group also have co-existing auto-immune type conditions? John, are you able to broadcast this question?
Thank You. curious @phoenix0509 ,David W.

Hello @johnbishop , an Update, interesting that I am now at day 13 of prednisone, 10mg/day x 10 days, then increased to 15mg/day for the last 3 days. I see only about a 40% decrease in symptoms. Its still early in the treatment of PMR. My symptoms are more bilateral arm pain/tingling and hip/leg bilateral tingling. arm pain > hip/leg pain. My MD elected a lower starting dose to help reduce the chance of a pseudoarthrosis at L5-S1 (TLIF November 2019). I am splitting my 15mg/day dose to 10mg/am and 5mg in pm. I am able to sleep longer at night (2 to 4 hrs) but still awake multiple times in pain. best David