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DiscussionPolymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Sep 10 12:05pm | Replies (1906)Comment receiving replies
Replies to "Hello @phoenix0509, I see this is your first post and would like to thank you for..."
Hello @johnbishop , an Update, interesting that I am now at day 13 of prednisone, 10mg/day x 10 days, then increased to 15mg/day for the last 3 days. I see only about a 40% decrease in symptoms. Its still early in the treatment of PMR. My symptoms are more bilateral arm pain/tingling and hip/leg bilateral tingling. arm pain > hip/leg pain. My MD elected a lower starting dose to help reduce the chance of a pseudoarthrosis at L5-S1 (TLIF November 2019). I am splitting my 15mg/day dose to 10mg/am and 5mg in pm. I am able to sleep longer at night (2 to 4 hrs) but still awake multiple times in pain. best David
John, @johnbishop, thank you for serving as a mentor to polymyalgia Rheumatica group (PMR). I will speak with my doctor about splitting my prednisone dosage to 10mg in am, and 5mg in pm. as a means to lessen the nighttime and/or early morning symptoms.
I also have SFPN (small fiber peripheral neuropathy) ,idiopathic in origin. My rosacea is also flaring every couple weeks this past month or so.
How many of the PMR group also have co-existing auto-immune type conditions? John, are you able to broadcast this question?
Thank You. curious @phoenix0509 ,David W.