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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)Comment receiving replies
Hello @rayabw, Welcome to Connect. You ask a good question. Have you discussed it with your doctor? I think it can mean something other than your PMR as a cause but then I'm not a doctor and have no medical training. Here's some information that may explain it for you.
Differential diagnosis of elevated erythrocyte sedimentation rate and C-reactive protein levels: a rheumatology perspective
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5047224/
You mentioned having PMR for almost 5 years and now being on a 3 mg maintenance dosage. Has your doctor ever discussed tapering off of prednisone as a goal? Normally you keep lowering the dosage until you are able to be off with no pain from the PMR.
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My rhuemy fells I should stay on the prednisone as long as these numbers are high. I have no side effects at this low dose. Complete blood work doesn’t show any other problems. Maybe my irritable bowel syndrome? An occasional UTi? I’m perplexed. Thank you for the link!