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@rayabw

Thanks for this group. I’ve had PMR almost 5 years. Initially it was quite painful but the prednisone calmed that. My confusion is that I am on a maintenance dose of 3 mgs and have no pain. But my CRP and Sed rates are way too high. About 38 on the CRP. What makes my markers continue so high? I will now try giving up sugar and low carbs.

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Replies to "Thanks for this group. I’ve had PMR almost 5 years. Initially it was quite painful but..."

Hello @rayabw, Welcome to Connect. You ask a good question. Have you discussed it with your doctor? I think it can mean something other than your PMR as a cause but then I'm not a doctor and have no medical training. Here's some information that may explain it for you.

Differential diagnosis of elevated erythrocyte sedimentation rate and C-reactive protein levels: a rheumatology perspective
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5047224/

You mentioned having PMR for almost 5 years and now being on a 3 mg maintenance dosage. Has your doctor ever discussed tapering off of prednisone as a goal? Normally you keep lowering the dosage until you are able to be off with no pain from the PMR.

I’m doing a low carb diet with no grains and no sugars. Add Vitamins A, C, D, Omega 3, magnesium, zinc, calcium and iodine then follow Dr. Davis who wrote Wheatbelly and make yourself some of his yogurt and you can get off Prednisone