@penn1023, the PMR mostly affected my arms, hands and shoulders but I did have some leg and lower back pain just not as bad as the shoulder and arms.

Almost every joint, at one time or other. They seem to make the rounds. First was toes, ankles and knees, then shoulders and arm pain, Now it's in my neck, and hips mostly. I had rapid unexplained weight loss with my first episode, along with leg pain and even swollen toes. Sometimes the wrists will be involved. Lab results confirmed the diagnosis. Prednisone really helps and I try to limit it, probably too much. I would feel better if I took more.

My initial pain was in my right hip then my left groin. It moved into my left hip, both thighs and both knees. I didn’t have arm and shoulder pain until 3-4 months into PMR. From my shoulders and arms it went to my neck and head and I ended up with a hearing loss in my left ear. This is a CRAZY ride and it keeps changing. I was diagnosed about one year ago.