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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Sep 10 12:05pm | Replies (1906)Comment receiving replies
Thanks for starting a PMR Group Ethan @ethanmcconkey! I hope other members with PMR will share their experience and share any tips they have.
I've had 2 occurrences of PMR. The first time it took me a little over 3 years to taper off of prednisone. The second occurence 6 years later, it took me 1-1/2 years to taper off of prednisone. I lived with a minor amount of aches and pains at each taper point but kept going unless the pain was really bad. It might help to keep a tapering off log and write down the dosage and the pain level so that you have something to compare with each time you drop the dosage. I started tapering by 1/2 mg when it got difficult and that seemed to help me.
Replies to "Thanks for starting a PMR Group Ethan @ethanmcconkey! I hope other members with PMR will share..."
I have a question. Has any one take Fosamaxw? I am on 8 mg of prednisone and have osteoporosis. I started prednisone medication 5 months ago. Just wanting to know if any one else is on it. Thank so much far any information you might give me
What was your initial dose? I am new to managing PMR and have found relief with 10 mg. of prednisone, and an additional 15 - 7.5 mg. of meloxicam as needed. The benefits of prednisone are great in that the pain is reduced enough to feel like I can "breathe easily." The side effects of moodiness and relapse of depression symptoms are not-so-good. I walk and do pilates and yoga too. I will have an appointment with a new physician in October because of a recent change in where my husband and I now are residing. I know consulting with a physician will help me choose my best course of action, but I also appreciate those who are in the know because you are living with this.
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John i believe u had posted that u used liquid turmeric? I can't find that post you had... how many mg/day of turmeric. I have really tried to change my diet towards a keto sort, to alleviate inflammatory foods such as sugars, carbs.. i'm not following a keto to the T, but I would say 90%... When I try and work out it hurts to lift any weights whatsoever, should I not lift if it hurts? or do you work through the pain, or will it damage where the inflammation is even worse? I also try and do some stretching and yoga and bike riding but not working out affects me mentally as it always has... sorry for all the questions but I would love to hear your wisdom and knowledge and appreciate this group.