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susanne1954 (@susanne1954)

Astrocytoma: Opting for Surgery

Brain Tumor | Last Active: Mar 5, 2020 | Replies (17)

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@lynda1992

Actually, I had five different brain surgeries between Oct – Dec 1992: 1. Ventriculoperitoneal shunt inserted. 2. Stereotactic craniotomy. Diagnosed with an intraventricular piloytic astrocytoma 3. Ventriculoperitoneal shunt removed due to infection 4. Insertion of external venriculostomy drain 5. Stereotactic fenestration of the septum pellucidum. Was then treated for unilateral hydrocephalus. My recovery was going great until 2014. I had another grand mal seizure. After being seizure free for over 21 years! I saw a doctor at Mayo Clinic and his diagnosis was: head trauma, brain surgery and/or scar tissue. I'm taking 30mg of phenobarbital a day. That seems to doing the trick. Thank you for asking.

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Replies to "Actually, I had five different brain surgeries between Oct - Dec 1992: 1. Ventriculoperitoneal shunt inserted...."

@lynda1992 – that is quite a list of surgeries.

Since you mentioned having a grand mal in 2014, if you've not yet met @jakedduck1, he has a lot of experience and knowledge related to seizures.

Have you experienced any side effects with the phenobarbital?