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Astrocytoma: Opting for Surgery

Brain Tumor | Last Active: Jul 30 9:33am | Replies (19)

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@lynda1992

The 1st doctor wanted to get a biopsy of the tumor. They would need to insert a needle into my brain to get that sample. When the pathologist said I could die on the table, I could be paralized on my right side, I could have an eye problem, speech problem or a short term memory problem, I freaked out. My doctor them gave me the option to see someone at Mayo Clinic. Of course, that's where I went. The doctor there was 99% sure the tumor was benign. I ended up having a stereotactic craniotomy. The tumor was benign! My doctor said any microscopic pieces left behind should flush out in my spinal fluid. I ended up developing hydrocephalus, so I ended up back at Mayo Clinic. Had three more brain surgeries followed by antibiotics twice a day for three weeks.

Like I mentioned, do your homework. Get another opinion. Surgery should only be done if it's the last resort. Limit your driving. Better yet, stop driving for now. Can you take something for the nausea? Please don't rush into having surgery. It just sounds like there's still a lot of unanswered questions. Thanks for listening.....

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Replies to "The 1st doctor wanted to get a biopsy of the tumor. They would need to insert..."

Dear,
my daughter who is 2.5 years old was diagnosed with astrocytic spinal cord tumor.
The tumor was detected by MRI imaging, after which neurosurgeons in Belgrade (Republic of Serbia) immediately performed the operation. We didn't have more than 3 days to make a decision whether or not to agree to the operation. We agreed because the doctors suspected that it was a malignant tumor and that the operation was urgent. After the operation, our daughter was left without the ability to move her legs, nor the ability to control her sphincters. Also, the tumor was not completely removed by surgery.
Now we are looking for a hospital and doctors who would take over to operate and remove the remaining part of the tumor.
Can you give us a suggestion of a doctor in the hospital where you were a patient?
Thank You !
Best regards!