I have the same thoughts on this as you. I see a lot of people on this site that are looking for answers and some kind of relief. I have always tried to find solutions to my problems in dealing with life situations and most of the time I have been successful. This problem just has way to many variables to solve. If I was to go about this practically, I would need a team of very experienced doctors, an expert in each field that applied to my medical problems. Then there would have to be a doctor who could talk to these doctors and organize an filter out what was necessary information and what was just not going to be of any use. That doctor would have to spend time listening to me as what symptoms I was experiencing. This alone is even confusing to me. If you look up those medical problems, the same symptoms show up in all of them. You really can’t tell which one is causing what. That is just to weird. There are no real medical tests for what I have, so how would you determine what is going on? In my case, my chemical sensitivity started before I had that surgery. One thing I have realized in my case is what ever was happening before Central Sensitization, has carried over and those medical problems have been hypersensitized. I never really noticed any problems dealing with my thyroid disease. Now I do. The chemical sensitivity has become unreal. Since I have read the replies I have gotten, I see that other people have had their senses affected. Mine are ridiculous. Light, hearing, smells,skin, touching something and even cognitive function are mine. I never experienced anything like that before. Just going to my neurologist office and having someone start talking or reading a newspaper and changing pages, will drive me up a wall. I have to wear sunglasses anytime I go outside and sometimes that doesn’t even work. My eyes start to hurt like hell and I get severe headaches. I never use to get headaches. I have worked outside most of my life. It never bothered me. One things that pisses me off is the lack of personal freedom I use to enjoy. Now I need to depend on my wife just to go somewhere. I don’t drive anymore. Not because I can’t drive but because I can’t go to the DMV to renew my license. Too many people, too much noise. I have tried three times and it causes too much stress just being there. The result of that stress are muscle spasms for three days and they are excruciating. My life now consists of a two a day walk with my dog. I can usually do this for about an hour a walk. Yes my feet hurt but they hurt worse if I just stand still. I find that doing nothing is more painful than doing something. I exercise 7 days a week. I have been doing that all my life anyway and I use to play different sports will going to school. Weight lifting was something I did all the time. I can’t do that anymore. I have found other ways of exercising, like pull-ups to do the same thing. While working for the telephone company, I blew out my knee while climbing a pole. I had to eventually have a joint replacement done. I need to exercise just to be able to maintain that. I will bring up something that has crossed my mind and I have experienced maybe so of you have. If you had a medical problem an need to go to the emergency room, would you? I won’t. They can’t help me for a lot of reasons now. They wouldn’t understand how to go about it and would cause me more problems. Again that is just me and I wouldn’t tell anyone to follow that idea. I am a realist when it comes to my future. While I see other people looking for answers and believing in something will come along to resolve this, I don’t. Too much confusion on just the research end of this medical diagnosis. I am 71 now and the natural aging process will not stand still while these people are doing their thing, and the body just breaks down. All the aches and pains that come with that will do me in. Just the stress that this crap is causing me now, non stop, will do me in. All realities. What I have decided to do is deal with it as long as I can. I have never been into using drugs. I was never an addict before I was made into one by doctors. I don’t plan in going in that direction ever again. I will have to decide at some point in this mess, whether I can tolerate anymore pain. Again this is just me and I have lived a long and very hard life, so I wouldn’t want anyone else to follow what I do or say.

Jump to this post