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Vitamin B12 and Neuropathy

Neuropathy | Last Active: Jan 22, 2023 | Replies (117)

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@goldleaf

Thank you for your response and time. To actually have conversation like this is refreshing. You have answered a question that I have been trying to research. That was if people who hand Central Sensitization Syndrome also had thyroid disease.I have been told that my thyroid disease affects this syndrome indirectly. In my experience that is so untrue. The neurologist agrees with me on this. So now I am even more puzzled. I will give the last example of this. Once a year I have the blood test for this problem. This recent test showed I had to high a level of that med in my system. That happens every so often. My primary doctor decided he would lower that dosage. I was taking 150 mg and he lowered it to 112 mg.It takes about 3 days before that process really takes affect. It was the affect I had a problem with and the subsequent pain it caused me that I paid a price for. I woke up in the morning and my world became a very ugly place. Anger and rage was part of that. I didn’t know what the hell was happening to me. By the time I made it to my neurologist, I had started to calm down. It took about a month before my life became livable again. The doctor and I talked about this for awhile band he was hoping that my body would become adjusted to the new dosage. That sort of happened. My body did a better job at that than did my mind. I found myself at an even high sensitivity level if that is possible. The other problem is I get muscle spasms on an off ever since I detoxed from that Fentynal patch. They happen everywhere and at odd times. Sometimes for no reason at all. Usually they only last for a couple of minutes and no longer than a hour. After that med problem and within that month, the muscle spasm from hell hit me. It went from the middle of my back all the way to my foot on my left side. I was crippled by it. Pain from hell. It wouldn’t stop. I had to make an emergency visit to the neurologist and he used the injection I get for my nerve damaged surgical site, to relieve that situation. Here is where my chemical sensitivity played in and that increased sensitivity blew me out of the water. Up until this point I could take two injections at one time with very little after affects. This time I went straight to hell. It takes about three days after those injections to feel some of the aggravation the steroid causes to the nerve endings. This time it felt like someone just lit me on fire. It took about another week before that to calm down. Now I am more cautious about anything to do with meds. I don’t know where I am at in that situation anymore. I am still in this hypersensitivity state. I will look into your suggestion about this med and thanks again for replying.

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Replies to "Thank you for your response and time. To actually have conversation like this is refreshing. You..."

Thank you goldleaf for describing your ordeal in such detail. I have experienced pain like yours but I could not put it into words as well as you did. This condition we have 'sux' and seems to be quite capricious. I have tried to correlate the good days and the bad days to anything I did or ate or took ... so far, I haven't found anything that triggers good feelings or the bad ones - it seems to be random. If my nervous system is dying and going 'haywire' and sending out false messages, I wish it would engender false feel-good sensations instead of painful ones.
Re: Comedy - I have found by watching entertainers and by being one that: when people are expecting comedy, they laugh at everything we say and do - when they are expecting something else (medical advice perhaps, or singing or dancing), comedy takes them by surprise and they have to mentally shift gears - they don't 'get it' so they don't laugh until later when they have a chance think about it again. Peggy

@goldleaf The only time I was ever in a state of severe health problems, before my neuropathy, also had to do with a medicine reaction, that kind of snow balled into a giant mess. (Notice that we have both chose the word "snowball" to describe extreme medical situations.) My extreme medical situation started innocently enough just by using an anti inflammatory for joint pains after my son was born. Over time, I had such bad esophogitis from the anti inflammatory, that I had to take various stomach meds for the esophogitis. They landed me in the hospital, sicker from the drugs, than the illness itself. So I know of the extreme reactions to meds. Central sensitization often causes extreme reaction to meds. In case you are interested, there are many docs on youtube that talk about central sensitization syndrome. I have listened to many, and some are outstanding. Sadly though, knowing about it does very little to help the treatment. All of the typical nerve damage drugs are used, along with a few anti depressants. So knowing what to call it, does not impact the treatment. I really think the whole area of treating chronic pain is very, very, limited. I know that whatever I can use to distract myself helps. But often the pain takes precedent because of the severity, and then the ruminating begins. This whole neuropathy forum is about people looking for answers. God bless all of us in our quest to feel better. We learn more from eachother here, than from our doctors. Take care, Lori Renee