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Replies to "Thank you for your response and time. To actually have conversation like this is refreshing. You..."
@goldleaf The only time I was ever in a state of severe health problems, before my neuropathy, also had to do with a medicine reaction, that kind of snow balled into a giant mess. (Notice that we have both chose the word "snowball" to describe extreme medical situations.) My extreme medical situation started innocently enough just by using an anti inflammatory for joint pains after my son was born. Over time, I had such bad esophogitis from the anti inflammatory, that I had to take various stomach meds for the esophogitis. They landed me in the hospital, sicker from the drugs, than the illness itself. So I know of the extreme reactions to meds. Central sensitization often causes extreme reaction to meds. In case you are interested, there are many docs on youtube that talk about central sensitization syndrome. I have listened to many, and some are outstanding. Sadly though, knowing about it does very little to help the treatment. All of the typical nerve damage drugs are used, along with a few anti depressants. So knowing what to call it, does not impact the treatment. I really think the whole area of treating chronic pain is very, very, limited. I know that whatever I can use to distract myself helps. But often the pain takes precedent because of the severity, and then the ruminating begins. This whole neuropathy forum is about people looking for answers. God bless all of us in our quest to feel better. We learn more from eachother here, than from our doctors. Take care, Lori Renee
Thank you goldleaf for describing your ordeal in such detail. I have experienced pain like yours but I could not put it into words as well as you did. This condition we have 'sux' and seems to be quite capricious. I have tried to correlate the good days and the bad days to anything I did or ate or took ... so far, I haven't found anything that triggers good feelings or the bad ones - it seems to be random. If my nervous system is dying and going 'haywire' and sending out false messages, I wish it would engender false feel-good sensations instead of painful ones.
Re: Comedy - I have found by watching entertainers and by being one that: when people are expecting comedy, they laugh at everything we say and do - when they are expecting something else (medical advice perhaps, or singing or dancing), comedy takes them by surprise and they have to mentally shift gears - they don't 'get it' so they don't laugh until later when they have a chance think about it again. Peggy