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Vitamin B12 and Neuropathy

Neuropathy | Last Active: Jan 22, 2023 | Replies (117)

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@mcgatt

Yes. The pain is too much. Beyond the threshold. One can only accomidate oneself to the situation and hope no one hears ones screams during the night.

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Replies to "Yes. The pain is too much. Beyond the threshold. One can only accomidate oneself to the..."

I usually don’t like to have a conversation about dealing with someone else’s pain but believe me I do understand your situation. I was diagnosed with Central Sensitization Syndrome a few years ago. Since a lot of people don’t really know about this diagnosis and that includes doctors, I will give you a general idea it. I use the term general because there are many reasons an varying degrees of how it affects people. To simplify it, it is an exaggeration that takes place in your central nervous system. In regards to pain, your brain starts thinking that your excruciating pain and your reaction to it is now a normal thing. So say if you bump your knee or stick yourself with a needle, the pain you feel is way beyond the actual happening. Doctors refer to it as a wind up. Once this happens and since I am living with this and all the reach I have done on this subject, it will never go away. There are no treatments that work or cures right now. This is a real medical problem not something in your head. Doctors are aware of this medical condition and it seems rare. I don’t think it is all that rare. Since I am not a doctor , I don’t expect or want you to take my word for it. Look it up yourself. People who suffer like you from long term chronic pain can have this happen to them. There is a genetic predisposition from what I have read that is part of why this can take place. Yes I have pain all the time and then I have excruciating pain quite often. Screaming and ending my life is what happens to. There is no pain scale I have been told by neurologist that can accurately measure this. I am being told that I have an even rarer form of Central Sensitization. This has affected all my senses. I have become chemically sensitive to. I can no longer use any pharmaceutical meds or even natural pain relievers. I can only eat certain foods. Sucking it up is not an option for me but a necessity. For me to advise you on how to deal with your pain would be ridiculous. What I would suggest is find a real doctor who will spend his time trying to help. I have found some relief with the neurologist I go to. I use injections of a steroid. That doesn’t help everyone but it helps me.