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← Return to Vitamin B12 and Neuropathy
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Hi Lori Renee
I'm sorry to hear of your b12 blood work and confused as to why it was allowed to get so low. Have you been diagnosed with Small Fiber Neuropathy already? Can't remember what type of neuropathy you have.
B12 deficiency caused my SFN. Never before did I know the importance of b12 and it's life altering, permanent effects. So sad that Drs don't make this is monitored priority especially for neuropathy patients.
My # was 212 when I testeed while looling for an underlying cause. Did weekly injections then every 2 weeks for 6 months until my b12/methylmelonic levels were average. Now to maintain, I take 3,000 mcg oral b12 daily.
Good luck on this next bit. You will level out but the question is whether more nerve damage has been done. My fingers are crossed for the answer to be no because it was caught early.
Rachel
Replies to "Hi Lori Renee I'm sorry to hear of your b12 blood work and confused as to..."
hi lori iwas so sick years ago i was lucky to find a kind kind doctor who treated me for no money i was a single mom of 3 and had no insurance at work i could barely stand the dr did blood work and my vitamin b12 was so low he put me on vitamin b12 shots my neighbor was a nurse and then she showed me how to give myself the shot easy to do but you hsve to know how to do it back then i also had lymes disease had all the symtoms but all my testt came out negative it wasnt until a few years ago that the test came out positive so between the lymes and my vitamin b12 being so low that is what caused the sfn iread it in the booklet after i had the skin test done the neurologist told me two or three times there is nothing to do for it was very impatient to get off the phone with me i ordered nerve pain relief on the internet never recieved it how horrible that people will scam you when you are in so much pain couldnt find the website so im afraid to order anything even vitamins i take pain meds for the burning pain in my legs but it does nothing for the weakness i have some better days i wonder if it goes into a type of remission but it doesnt last everything is an effort i keep praying for a cure or meds that can really help thanks for the info
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@rwinney Hi Rachel, Needless to say, I am very upset that doctors missed my low level, staring at them in the face. I am so sorry that your SFN started this way. I have large fiber, and most likely small fiber, even though the biopsies did not show it. My neuro nurse said the biopsies are not completely accurate, and all my symptoms are of small fiber. I know how sick you are, and so diligent with yourself. Wish that the doctors were half as diligent. Anyway, I will start my shots as soon as I make appointments with a lab by my house. Have no idea at this point if B12 will even help. Thanks from the heart, for responding. Rachel, this life of ours is not easy. God bless, and I will post when I know more. Lori Renee