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My Cochlear Implant - a journal

Hearing Loss | Last Active: Jul 22, 2023 | Replies (159)

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@contentandwell

@lizzy102 I was remiss in joining this conversation until now but I have just read through all of it. I want to thank you for journaling your whole experience so well. It's exactly what a person who is considering a CI needs -- the pros and the cons. I know I will refer back to it if/when the time comes that I do qualify for a CI.

I am not quite to the point where I qualify for a CI but I know I am not too far from it. My hearing has degraded quite a bit in the last few years and my word recognition has really decreased. This seems to have happened since I had a liver transplant in 09.2016. I have read that there is some possibility that those things could be related - hearing loss and immunosuppressants. If so it's not a common side-effect but a less frequent one. It can be very discouraging and depressing to be in a group and not understand much at all of what is being said, even when speaking directly to one individual. The background noise intrudes too much. My family, particularly my son, try to accommodate my loss, and the couple we spend most of our social time with are very accommodating. She, coincidentally, had a deaf aunt and was a teacher of deaf children so they both have dealt with hearing loss.

I know that you cannot wear a CI in the water. I go to water aerobic classes regularly and wear my hearing aids -- my head remains above water, but there have been a couple of occasions when I slipped and my hearing aids were briefly submerged. They were not damaged by that brief submersion. Would that be so also for a CI?
Thanks again for such an informative journal of your experiences.
JK

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Replies to "@lizzy102 I was remiss in joining this conversation until now but I have just read through..."

Hi JK, First, thank you for your kind words, it means the world to me that my thoughts might help someone else in their hearing loss journey.
There are many drugs that transplant patients must take that are ototoxic. You can google your medications and see which ones are most toxic to your hearing, however... as a transplant patient, you likely must take these medications. To me, living with hearing loss is preferable to pushing up daisys!
Please, when this is over and it is safe, find a university or large speech and hearing program and ask them for an evaluation. Likely your audiologist isn’t qualified to do the test or make the call.
Cochlear recipients are entitled to 4 devices - from a large list - to help you live the richest life you wish. One of the devices I chose was a waterproof case for my implant. I can tether it to my hair and wear a headband to keep it in place while I swim or exercise in the water! You can buy other accessories but I am also a water person, so this was an important choice for me.
The last and most important thing I can say to you is do not be afraid to ask for what you need to help you hear in groups. Sheri Eberts has wonderful short articles on her blog of ways to ask, things to give folks so they understand more what life is like for you and tons of encouragement.
JK, You are going to move forward in your hearing journey. Be proactive and positive and breathe when things get so discouraging, depressing and frustrating.
Blessings,
Liz