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DiscussionMy Cochlear Implant - a journal
Hearing Loss | Last Active: Jul 22, 2023 | Replies (159)Comment receiving replies
Replies to "@lizzy102 I was remiss in joining this conversation until now but I have just read through..."
Hi JK, First, thank you for your kind words, it means the world to me that my thoughts might help someone else in their hearing loss journey.
There are many drugs that transplant patients must take that are ototoxic. You can google your medications and see which ones are most toxic to your hearing, however... as a transplant patient, you likely must take these medications. To me, living with hearing loss is preferable to pushing up daisys!
Please, when this is over and it is safe, find a university or large speech and hearing program and ask them for an evaluation. Likely your audiologist isn’t qualified to do the test or make the call.
Cochlear recipients are entitled to 4 devices - from a large list - to help you live the richest life you wish. One of the devices I chose was a waterproof case for my implant. I can tether it to my hair and wear a headband to keep it in place while I swim or exercise in the water! You can buy other accessories but I am also a water person, so this was an important choice for me.
The last and most important thing I can say to you is do not be afraid to ask for what you need to help you hear in groups. Sheri Eberts has wonderful short articles on her blog of ways to ask, things to give folks so they understand more what life is like for you and tons of encouragement.
JK, You are going to move forward in your hearing journey. Be proactive and positive and breathe when things get so discouraging, depressing and frustrating.
Blessings,
Liz