Be sure that you are kind to yourself. Do things you like that make you smile. Having a positive attitude makes a difference. My doctor truly believes I am still alive because of my attitude. I refuse to spend one minute agonizing over when it will get worse. It is what it is and I am in battle mode, but I will enjoy every minute of my life. Hopefully, you doctor networks with with other doctors. Hang in there. Medicine has come a long way. God bless