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DiscussionPancreatic Cancer Group: Introduce yourself and connect with others
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Replies to "Hi beachdog, thanks for your thoughts and prayers, they are so appreciated. My husband’s tumor is..."
It's good that your husband is feeling well while getting his infusions. Folfirinox is a tough regimen. I should have also asked if his treatment includes the wear-home 48 hour infusion of 5FU?
My wife was initially diagnosed as borderline resectable but the chemo and sbrt shrank the tumor so much that resection was able to be done. Your question of "where" is possibly the most important in pancan treatment. We are in Orlando FL and we got a local diagnosis but went to Johns Hopkins for second opinion. Her infusions were delivered locally under the direction of JH . Her sbrt and surgery were also at JH.
SF is a major city and your husband should see a surgeon who has performed hundreds of pancan surgeries. It's not a procedure for anyone who's read about the procedure but doesn't have tons of experience. Don't be embarrassed to ask your surgeon how many pancan procedures he and his staff and the hospital have performed and assistance in a second opinion referral. Also the success rates of the surgeries. We also spoke to surgeons at MD Anderson in TX and Moffet in Tampa.
Also contact pancan.org They have a referral service as well as support groups if you need one.
Best wishes.