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@beachdog

@allboyzoo Best wishes and prayers for you and your husband. My wife was diagnosed at stage 3 in July 2019 and had 9 folfirinox treatments before sbrt and then an Appleby surgery as well as spleen, Gaul bladder, adrenal and lymph nodes removals. Her tumor was mid-pancreas. Most diagnoses you'll read about are in the head of the pancreas and receive Whipple procedures. Do his folfirinox treatments include oxalyplaten? Has his tumor been genetically analyzed? There is a particular PALB2 mutation which makes the tumor susceptible to the oxalyplaten. Hopefully his C19-9 starts dropping with the folfirinox treatments. Good luck

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Replies to "@allboyzoo Best wishes and prayers for you and your husband. My wife was diagnosed at stage..."

Hi beachdog, thanks for your thoughts and prayers, they are so appreciated. My husband’s tumor is in the tail and body of his pancreas. It was already 10cm when it was discovered and he had no symptoms other than vague abdominal pain. He also has several smaller lesions on his liver making it stage IV. He had his second round of Folfirinox today and oxalyplaten is included in the cocktail. A liver lesion was biopsied for genetic testing, but we haven’t received the results yet. Most doctors we’ve spoken to say he’s not a candidate for surgery, but I wonder why at Stage 3 your wife was. I hope she’s doing well, that sounds like so much to overcome. We’re in San Francisco, so maybe another region of the country has different ideas. I’m a labor and delivery nurse and everything I know about oncology I’ve learned in the last eight weeks. I’m not sure what I’m looking for on this platform other than hearing how others navigate this difficult course. I have hope for my husband because he’s otherwise healthy. He works as a residential building contractor and we had to stop Home Depot on our way home from the six hour infusion treatment this afternoon. We try to stay positive, we’re surrounded by our kids, a beautiful family and so much to look forward to.