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kfs (@kfs)

Glomus brain tumors (paraganglioma)

Brain Tumor | Last Active: Feb 18, 2020 | Replies (16)

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@hopeful33250

Hello @kfs

Your confusion is well understood by many of us on Connect. Conflicting opinions by specialists is indeed frustrating and certainly can be anxiety-producing. I suggest, as did @lisalucier and @jenniferhunter, that you seek another opinion. I do suggest that you consider going to a multi-disciplinary medical center like a university medical school or a Mayo facility. These centers are both research-oriented and usually have a medical team that is very good at communicating with patients.

Do you have a facility like that nearby?

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Replies to "Hello @kfs Your confusion is well understood by many of us on Connect. Conflicting opinions by..."

I would love to go somewhere like the mayo clinic but I can't afford it. I'm paycheck 2 paycheck. The closest places here are about 2 hours away and I've been to a cancer institute there..but that's about it