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kfs (@kfs)

Glomus brain tumors (paraganglioma)

Brain Tumor | Last Active: Feb 18, 2020 | Replies (16)

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@kfs

The neurologist is convinced I'm "cured" from my symptoms minus tumor and migraine. I was sent to a balance specialist who determined I've got a significant deficit in my inner ear near the tumor.my neurologist has sent me to physical therapy for it and after a year I was doing way better but a few weeks ago I started getting dizziness episodes. And more migraines..when this all began in 2018 I had vertigo that sent me on this journey and my migraines completely went away. They didn't come back until last nov 2018 and have had them get worse over time.she increased my preventative med- amitriptyline to 75 mg..the tumor, the migraines and dizziness they feel is not affecting the tumor and said watch it and wait for symptoms b4 another MRI which confused me cuz those ARE the symptoms too

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Replies to "The neurologist is convinced I'm "cured" from my symptoms minus tumor and migraine. I was sent..."

Hello, @kfs – sounds like it's really hard to parse out what is related to the tumor and what is not. The neurologist you are going to see in January — is this a neurologist who has a different focus than the other neurologist you've seen?