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Stage 3/4 Kidney disease: I need support before my appointment

Kidney & Bladder | Last Active: Dec 31, 2019 | Replies (18)
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@tellron

Are you located in Jacksonville FL? If you are, we have a support group that meets once a week from 11:00 to 12:00 noon. There are folks with liver and kidney transplants and people waiting for transplants. We can help with answering any questions that you might have. We also have a Mayo social worker there to keep everything in order. We meet in the 1050 Cannady Chapel. Our group name is Second Chance Support Group of Jacksonville. Hope this helps you out. I had a kidney and liver transplant Dec. 28 2016. I was very sick prior to transplant, dialysis 3 days a week 4 hours per day, in and out hospitals for 2 yrs. Then I went to Mayo! Awesome organozation. Only had 2 days left according to doctors unless I recieved my organs. Mayo procured them, I was transplanted. Had a couple of hiccups during 1st year but since then, life is good. My numbers are perfect. There is life after transplant. You can do it!

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Replies to "Are you located in Jacksonville FL? If you are, we have a support group that meets..."
Rosemary, Volunteer Mentor | @rosemarya | Nov 25, 2019

@tellron, I want to welcome you to Mayo Connect. I am thrilled to meet you and to congratulate you on your soon transplant anniversary. I am also a liver/kidney transplant recipient - April 2009 at Mayo Rochester for PSC. I live in Kentucky, and I am a bit envious of you for being able to participate in the support group! I actually discovered Mayo Connect because I wanted to meet others after my own transplant, and I now enjoy meeting with patients from around the country and world.

I want to take this opportunity to invite you to participate in the Transplant Discussion Group. Would you be comfortable to share your own experiences as a way to support others who are not living in the Jacksonville area?
Here is a discussion where liver transplant patients are asking questions and supporting each other > Liver transplant support group
https://connect.mayoclinic.org/discussion/liver-support-group/
Here is one that is particularly relevant for transplant parients, especially at this time of year.
What do you do when your temperature goes Up, Up,..?
https://connect.mayoclinic.org/discussion/what-do-you-do-when-youir-temperature-goes-up-up-d/
@tellron, Will you be attending the Support group tomorrow?

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