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MAC Reboot - After 3 Years Post Meds

MAC & Bronchiectasis | Last Active: Jan 17, 2020 | Replies (47)

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@bluesplashgirl

Hi Terri, I have COPD and also have scarring in my lungs. I am still waiting to see my infectious disease doctor (it’s the end of year craziness with trying to get an appointment). I will talk to her about maintenance after I am finished with the antibiotics in 18 months. I really never thought I would be back in this place again. I am fairly certain I got MAC from the horse barn that I was boarding at. Super dirty, dusty and moldy! I also had aspergillus pneumonia (still waiting to see if I have that back, too) and one of the horse had an “infection” in it’s eye they couldn’t get rid of until they finally diagnosed it as aspergillus! So, now that Dylan is gone and I have stopped riding I am hoping that after my next round of drugs and lots of precautions with gardening, etc. it will stay gone! Thanks for all your great information. What a relief to have this group. I hope you are well and happy. Carolyn

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Replies to "Hi Terri, I have COPD and also have scarring in my lungs. I am still waiting..."

@bluesplashgirl, Hi Carolyn. Yeah, I have COPD and scarring too; along with bronchiectasis, and mild pulmonary hypertension, and SVT of my heart. Oh yeah, and I am an Alpha-1 Carrier. I have been reading almost non-stop about mac and lung diseases since 2007. I did come across articles about horses and chickens being associated with infectious diseases. Like you said, stables can be dusty and moldy. In the case of chickens; their coops can really be nasty. Many bird and chicken keepers tend to catch lung diseases. I have a feeling it may be due to the very fine feather/queill scales that they slough off and get inhaled. Also when their droppings turn into dust form and get inhaled. How long have you known about your COPD? Do you currently have many COPD symptoms?