I understand how distressed you must feel. It must have felt like a hole opened under your feet or like a ton of bricks landed on you! I’m sorry you’re dealing with so much joangela, it is a lot to hear all at one time. I received some advice from a gifted doctor and hope sharing it with you will help.
I have had two kidney transplants and Atrial Fibrillation. I have osteoarthritis. Meds for my heart damaged my thyroid and caused osteopenia. The list goes on... Meds given me from a transplant rejection episode 28 years ago were what started progressive nerve damage leading to severe/profound hearing loss. I am going to have a cochlear implant soon.
So, how do I deal with it all? That doctor, 50 years ago told me, “If you live your life as if you are healthy; plan far into the future, be active (even when you don’t want to or don’t feel like it, do what you can), play, make dreams and set goals knowing you will accomplish them. If you do this, you will hold what health you have over far more years than if you succumb to despair about the loss of your kidneys.” I took his words to heart. At that point, I had just been told that I would need dialysis or a transplant soon. I thought I was going to die just as quickly. So, I began to plan and live into the future, went to college, started a family... it was over ten years before I finally needed that kidney transplant and 21 years before dialysis took me into a chair hooked up to machines three days a week. And a year later, I had another kidney transplant.
At each diagnosis I’ve subsequently received, I’ve reminded myself of Dr. Hopper’s words and persisted making plans, living into the future and staying as active as I can given my health.
Joangela, don’t let these diagnoses, and the pain that accompanies them, keep you from dreaming into the future and being as active as you can manage, don’t let them keep you from eating the best quality foods (organic) and exploring alternative medicine for relief. Meditation, gentle yoga and organic foods, as possible, are mainstays for me, I love massage for pain and take pain meds at the first hint that I’ll need them (they’re more effective that way). I listen to my doctors and weigh what they say carefully. You could do these things as well. Many blessings.
Yours is an inspiring story and I admire you for the strength you have shown in facing very challenging procedures.