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vfaye (@vfaye)

Anyone with experience using Low Dose Naltrexone?

Autoimmune Diseases | Last Active: Nov 23, 2019 | Replies (20)

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Hello @vfaye. You may notice I combined your discussions on low dose naltrexone to one discussion and moved it to the autoimmune diseases group where the other PMR discussions are located. @vfaye, here is some additional information on naltrexone and its possible uses, https://www.mayoclinic.org/drugs-supplements/naltrexone-oral-route/before-using/drg-20068408. There are some counter-indications listed for this medication and it does mention it should be prescribed by a medical provider and they can help decide the best regimen moving forward. Is this a medication that you have discussed with your provider?

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Replies to "Hello @vfaye. You may notice I combined your discussions on low dose naltrexone to one discussion..."

OMG I am so pleased to meet you and read your post as I literally have just sat down to rest after taking a hydrocodone and returning from my first MM dispensary visit. A bit overwhelmed but, incredibly prepared thanks to this forum and my years worth of research. You totally are speaking my language regarding pain, pain management and drugs. Thanks ever so much for sharing your story, trials and tribulations, and providing something more I can relate too. I've had several RFA, have LDN sitting in my cabinet as plan B to medical marijuana. Hoping so bad to be able to ditch my Lyrica, Hydro, infusions and maybe Duloxetine but, only time will tell. You give me such hope and honestly timing couldn't have been better. Mayo Connect has provided me more than any Dr ever has or will and for that, I am forever grateful. Mimi…you are awesome. Thanks for speaking your truth. Rock on sister!!!!💪🏼

Hi Justin. Yes, the LDN is being prescribed by a doctor. My primary care physician said he couldn’t prescribe it, and only offered prednisone for relief of the pain. I just started it last night – 1 mg nightly for a week, to be increased. I have also started to take CBD oil, a small amount at night. Wisconsin has not legalized marijuana use, so it is without THC. I have not found anyone to guide me, so I’m following the “go low & slow” direction. Mornings I rub hemp infused balm on my shoulders & use a heating pad (the shoulder pain is the worst). Before Noon I soak in a bath of Epsom salts & baking soda. It seems to help.