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ghennel (@ghennel)

Sick daughter goes undiagnosed

Just Want to Talk | Last Active: Mar 4, 2020 | Replies (40)

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@ghennel

She did have her thyroid checked thoroughly. It was slightly off, however she is not producing progesterone. They are trying to address that and think if they can get her hormone levels corrected it may help correct the thyroid. It very well could be an enlarged lymph node, it comes and goes when she is having a "flare up". No one will check into it far enough to really find out what is going on. They all feel it, I can feel it, then it gets dismissed. Lupus was checked off the list, so she isn't dealing with that. I do believe it is autoimmune due to the fact she goes through flare ups. She feels very dismissed and ignored by the health professionals she has seen. It will take an outstanding facility and set of doctors to diagnose her. Too bad great health care is only for the wealthy these days.

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Replies to "She did have her thyroid checked thoroughly. It was slightly off, however she is not producing..."

Another thought- at her age the thyroid should not be slightly off- no explanation. Same with progesterone. The pituitary gland in the brain regulates production of many hormones. Endocrinologists should be able to explain why. Don’t give up – keep pushing for answers to all deviations from normal.

Sorry to hear undiagnosed, I know it's frustrating. I have graves diease it's in remission for the time being but I do have other mystery illnesses that I'm working on because it doesn't seem the medical doctors understand. Test you may want to look at DNA sometimes can give a clue, genvoa nateval test, 24 hour cortisol salvia test most insurance will cover these test the problem is getting a doctor to order them. My mystery illness has something to do with oxalates once I changed to a lowering oxalate diet I went in remission with my graves plus even thou I've been on a lowering oxalate diet for two years my genvoa test says I'm still high oxalate so I do have gentic that show this also. Then my DNA says mthfr gene mutation my genvoa nateval test shows my vitamin Bs glutathione alpha lipoic acid are all low or deficient I'm working on these issues it not that easy because I have reactions to some of the supplements, the coritsol test can tell alot what's going on stressing the body and adrenal. What was her thyroid test numbers hopefully they tested tsh ft4ft3 t3 t4 rt3 trab tsi tpo selenium iodine levels iron/ ferritin. I'm still looking for a doctor that can help me my functional doctor just handed me my test and told me she doesn't treat issues like mine.

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