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ghennel (@ghennel)

Sick daughter goes undiagnosed

Just Want to Talk | Last Active: Mar 4, 2020 | Replies (40)

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Hi, I posted a reply on my post. So sorry your daughter is going through this. Has she had a colonoscopy? Checked her thyroid, thoroughly? Could the mass be an enlarged lymph node? I have low-grade fevers on and off, relentless. I started having inflammation on my face and ears, which sparked all the autoimmune stuff, thinking I might have lupus. I dont, but found out that "rashes" or inflammation, was part of the ebv virus. I cant go to mayo either. I too find doctors dismiss me before they even talk to me.

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Replies to "Hi, I posted a reply on my post. So sorry your daughter is going through this...."

She did have her thyroid checked thoroughly. It was slightly off, however she is not producing progesterone. They are trying to address that and think if they can get her hormone levels corrected it may help correct the thyroid. It very well could be an enlarged lymph node, it comes and goes when she is having a "flare up". No one will check into it far enough to really find out what is going on. They all feel it, I can feel it, then it gets dismissed. Lupus was checked off the list, so she isn't dealing with that. I do believe it is autoimmune due to the fact she goes through flare ups. She feels very dismissed and ignored by the health professionals she has seen. It will take an outstanding facility and set of doctors to diagnose her. Too bad great health care is only for the wealthy these days.

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