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Teresa, Volunteer Mentor (@hopeful33250)

Status Epilepticus

Epilepsy & Seizures | Last Active: Feb 23 4:34pm | Replies (12)

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@hopeful33250

Thanks for sharing some personal experiences, @jakedduck1. I am sorry to hear of your many seizures.

Are you on a pretty good medication routine now to keep it under control?

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Replies to "Thanks for sharing some personal experiences, @jakedduck1. I am sorry to hear of your many seizures...."

@hopeful33250
For whatever reason, my seizures stopped in 2011. I have no idea why. Just very grateful they did after 44 years, except when I forgot my medicine Aug 22nd. I take Carbatrol and Phenobarbital. Doctors seldom prescribe Phenobarbital but I think it's a very effective drug. I told a man's fiancee in Africa to ask his doctor about it. He's on it now and has been seizure-free for about 6 months. Am I in trouble for suggesting that? It came out in 1912, it's been studied over 100 years and there are side effects especially for children but wait till these new drugs have been studied that long. I'd love to be around at the end of the century to see how popular some of these newer drugs will be used. They already suspect that Benzodiazepines may cause Alzheimer's.
Jake